Cervical and lumbar stenosis, 7 herniated or bulging discs, spondylothisis.

This is not a CCI question.

36M, non genetics confirmed clinical clEDS diagnosis. I was in the ER three weeks ago for buzzing and parathesia of the extremities, as well as clumsiness. I got a 2.5 hour MRI. It found spinal cord compression at c4-c5, c5-6 from congenital stenosis, aquired stenosis (osteophytes), a bulging disc at c1-c2 not compressing the cord. Three bulging discs in the thoracic spine, as well as an annular tear and herniation. The lumbar spine had a annular tear/hernia at l4-l5, and a grade 1 spondlyothes at l5-s1.

My pain is 5/10-6/10 on all but the worst days, but I definitely have myelopathy (reduced reflexes some places, spastic others), tremor, and demonstrable clumsiness if I stay upright longer than about 2 hours. Peeing is difficult, but I have been screened for cauda equina.

I've got full ROM and full strength except for 4/5 in one test by PT evaluation in the neck, and 5/5 and full range in the thoracic. I had an epidural inection for the lower back - it has helped with some of the balance and the peeing issue.

I'm curious if anyone has had so many disc/arthritis issues found in their spine, how epidural treatment worked, how it progressed for them. My main issue is not the pain and that is all the doctors are emphasizing at this point. I'm most upset with how the neurological problems impact my ability to have a full day.

I'm still processing this - alternating between at least it wasn't stroke/cancer and wondering what it means for the future. It would be very helpful to hear from anyone who has found something like this out after an MRI.