not feeling better afetr surgery

Hi everybody, thank you for shares

I had exploratory surgery in Fribourg in June 2024 on two levels. They only found neomembranes and the scars of two leaks that they thought had closed, but they weren't 100% sure. My symptoms began after my epidural in November 2022. I then had three blood patches (not radioguided), which provided partial but not lasting relief (at first I had pain between my shoulder blades, shoulders, neck, occipital region and a little on the top of my head; after the two blood patches, I only had pain in the back of my head until my surgery ).

After the surgery, in addition to the pain in the back of my head, I started to have pain in my forehead and on top of my head. I have had less and less pain on the front of my head for the past two months, but the pain between my shoulder blades, in my neck and on top of my head has returned and is quite severe.

I was asked to lose 14 kg after the surgery because I was overweight, which I did. I took Diamox and now I am on 50 mg of topiramate. I am in contact with Fribourg and will see them again next week, but I feel that they do not know whether I have low or high pressure or whether I have chronic pain, and they do not know what else to suggest. I am afraid that they have nothing else to offer me, as I am only at 30% of my physical capacity.

Do my symptoms mean anything to anyone? how long can last an RIH ?

I'm afraid I have another leak that may have been caused by a blood patch or even the surgery. I feel even worse than before my surgery.

Thank you very much for your replies.