Anyone tried prolotherapy for EDS-related cervical instability?
Hey gang
I have Heds and a long history of total disc replacement L5-S1 (ex paramedic sustaining significant back trauma resulting in the surgery)spinal fluid leaks from another traumatic injury to back of the head
5 epidural blood patches that made me a functional leaker
and cervical spinal stenosis central and foraminally from C3 down to c7 loads of horrible instability and all the new neurological symptoms that go with that.
Has anybody had prolotherapy to stabilize cervical instability and what's the consideration for people with EDS and the potential side effects?
Can anyone please advise if they have experienced or had prolotherapy or prozone therapy the national health service are doing anything to support me in the UK I'm getting increasing issues with bowel incontinence cardiac issues SVT's
weakness in legs and arms.
None of its consistently there but is happening sporadically, & is brought on Posturely I.e. head forward, bending forwards so much crossover and similarity between the Spinal Fluid Leak except now if I lay down for too long, I wake up with tachycardia .
There's obviously impingement happening in my vagus nerve or vessels in my neck when I'm trying to lay flat now.but I have continuous daily pain, pretty horrific instability and bobblehead scenario.
Iam so so dizzy but not low blood pressure as radial pulse still very much present type .
I'm hoping that the prolotherapy will stabilize that at least slow down what's going on
Thanks everybody
Best wishes Kate
Shared experience, not medical advice.