What to expect?

I had lumbar fusion surgery in late Jan. Procedure resulted in leaving me with a large epidural hematoma that sat for 83 hours prior to additional surgery. My symptoms are nothing I can compare to or correlate against. I also don't know anyone that has experienced this. It has made me feel helpless. Would love to be able to talk to someone that may have gone through something similar. I am ambulatory but experiencing significant pain, and neuropathic symptoms on the anterior thighs bilaterally, hips, and buttocks. I am identifying some saddle symptoms that seem to be developing more as time goes on.

I am very surprised by the worsening nature of my symptoms. No pain or muscle relaxant has any effect on the symptoms. I have also been on Gabapentin which does nothing other than cause swelling of my legs to tree trunks. Gaba was recently swapped out for Horizant (different formula with Extended Release) seems to help with the leg swelling. $10 for Gaba, $700 for Horizant, wow.