Yeah, my back hurts, too.
Something has been bugging me lately. I rarely discuss my AS problems with anyone in real life besides my fiancé because I don't want to complain a lot or draw attention to myself. On the other hand, sometimes I feel the need to explain more to educate people. I've told a few people at work since they see me limping, using heat on my back, etc., and I've tried to explain just the basics very clearly. Still, I get met with comments that sometimes seem dismissive and sometimes seem like the person did not listen to how different these symptoms are from run-of-the-mill joint pain, tiredness, etc. When I take the time to inform those who are interested, I get frustrated when I hear things like, "Yeah, my back hurts, too," and "I know what you mean" about extreme fatigue, chronic pain, etc. I know some people are just honestly trying to relate, and that's fine, but it's almost a little insulting to have healthy people act like they know what this is like. I know they can't, since there's no way I could have imagined what this was like before I had it. Am I crazy/too sensitive? I'm not asking for empathy from healthy people. They ask, so I try to inform. I know I make it clear that this is not mechanical pain, normal fatigue, or anything like osteoarthritis. If I'm not alone here, what do you do in those situations? Let it go? I'm the type to correct wrong information, so that would be very hard for me, but I do try not to sound like an ass. Sometimes I don't want to bother explaining in the first place if people are just going to chalk it up to normal back pain that I'm probably overreacting about.
Shared experience, not medical advice.