Cauda equina syndrome after surgery, will I get my legs back?
Hi, I'm Jason.
On August 31st I had emergency surgery to remove a disk due to Cauda Equina Syndrome. I spent 8 days at Rhode Island Hospital post surgery. After, I was moved to Newport Hospital, Vanderbilt Rehab. I've been adjusting to the loss of my legs. The rehab team has been building up my strength working 3+ hours each day. Each day I am achieving micro goals. My confidence has been boosted from achieving these micro goals.
I am due to go on 9/24. Life is going to be different from before I went in for the surgery. Prior to the surgery, I had full use of my right leg, and the lower half (below the calf) on my left was numb. The surgeon's have indicated to me that it's not likely that I'll get the feeling back. Yet I have been told by the rehab center that there is still the possibility of getting my legs back. Right now I am working under the premise that I will not get my legs back. If I do, then that would be a miracle.
As our house is not ADA compliant and we are not able to modify it, we are selling the house. We've been approved for a 3 bedroom apartment that is ADA compliant. Move in date is Nov 11th.
Would love any advice around Cauda Equina Syndrome.
Thank you
Jason
Shared experience, not medical advice.