Finally had a good day!
Some of you may know that a few months ago a doctor took away my Ehlers Danlos Hypermobility type diagnosis. Well, after rushing to A&E (ER for across the pond) because I couldn't feel my legs I finally got A DIAGNOSIS!!!!!! YAY!
(maybe my sister will finally stop insisting that I'm making everything up!)
I was diagnosed with Classical Ehlers Danlos Syndrome, Spinal Stenosis (Lumbar and Cervical) among other things that go hand in hand with Ehlers Danlos.
We are considering treatment options but since I've been suffering with my neck and back for about three years now- all doctors said I was either making it up because I was far too young to have spinal problems or that it was due to growing pains- and can no longer walk or take part in activities surgery seems the best option.
A little scary. My parents are very, very angry with the doctors who dismissed everything but I'm feeling so relieved that I'm finally getting some help.
Hopefully from now on we'll only be moving onward and not be stuck in the same frustrating cycle we've been in for years.
Have any of you guys had surgery from DDD or Spinal Stenosis? What should I be expecting?
:)
Shared experience, not medical advice.