Spinal surgery: worth the leap for full recovery?
Hi friends.
After about 1 year of leaking, 6 months of a positive MRI but no leak location, and three failed blood patches, I went through with a CT myelogram with Dr. Huang at Brigham and Women's Hospital in Boston.
Fortunately, the scan did locate the site of my leak--T5, located on the ventral side. They believe it's caused by a bone spur repeatedly damaging the dura at that site (hence why the blood patches have all failed). My neurology team has recommended surgery and I have recently met with the surgeon who will be doing the procedure--Theresa Williamson at Massachusetts General Hospital. She seems lovely and knowledgeable, but when she described the surgery (a laminoplasty) in depth to me, rather than comforting me, it gave me a massive amount of anxiety.
Dr. Williamson seems to believe that this surgery would almost certainly repair the issue completely and would allow me to fully recover from my leak in about 3 months. As tempting as that prospect is, spinal surgery is not without risk. I am lucky enough to have about 6 hours of upright time and am mostly functional in my life. Is it worth it to go through with the surgery for a chance at a full recovery?
Any personal anecdotes about spine surgery, positive or negative, are welcome.
Shared experience, not medical advice.