Anyone else have severe spine pain with lupus?
I’ve been diagnosed with “mild lupus” first it was fibromyalgia RA then finally lupus I get rashes dermatagrophia flushing o take hydroxychloriquin 200mg Zyrtec famotidine and hydroxyzine for all my other allergy stuff every one always mentions MCAS yes I’m sure I have it too I have had brain scans abdominal ct scan ultrasounds that are normal but every flare up I get my neck and back and spine hurt and it’s extremely painful it pops its stiff and goes to my brain I always get scared I’m coming down with meningitis because of how painful it is it hurts to sleep I get this zinging burning sensations all over body and in neck in lymph nodes and severe brain fog where I feel like I can’t see I just feel off like I’m dying and it causes anxiety with my back I’m waiting to get a back MRI I’ve done all the blood work and other scans brain scans normal things but I’m curious if I have autoimmune in my spine and is always comes back to spine and back issues that is severely painful it almost feels like I have a spinal infection if I can explain the pain does anyone else have any input or have had anything similar !!?? Also my vision I always feel like I’m going blind or my vision is blurry have a hard time seeing at night or going double I’ve been to eye specialists everything’s normal I have glasses I’m curious if I have MS or something going on in my spine because gets not my brain nor vision
Shared experience, not medical advice.