spinecommunity
← All discussions

Where to turn?

Hello,

I am extremely frustrated and hoping to get some guidance. I’ve had symptoms of CSF leak for over two weeks but all scans are negative. I tried to see specialist at HSS yesterday but bc MRI’s show no evidence of tear he passed me back to my neurologist, who is now telling me to see a headache specialist. I’m pretty certain I have a leak. I had one patch and it did work for a few days. I’m finding it hard to get to the right Dr and I’m sure I need a CT scan w Mylography. Not giving up on HSS Dr and being pretty annoying about getting a consult but feel at a loss.

Any advice?

Thanks!

Shared experience, not medical advice.