spinecommunity
← All discussions

My Myelopathy: A long journey…destination unknown

Research is increasingly demonstrating the importance of early diagnosis, and treatment as appropriate, of CSM and CDM. I am sharing my journey to show how easy it is to ignore early symptoms and how difficult it can also be for doctors and other clinicians to suspect this condition as a diagnosis. Hopefully increasing awareness of the condition, and the differences in outcomes as a result of early diagnosis, will encourage more people to raise the possibility of CSM/CDM with their GP - and more GPs to consider this diagnosis for further investigation. [Full detailed personal journey with multiple ACDF procedures, recovery challenges, progressive myelopathy symptoms including bowing, incontinence, limited mobility, and ongoing management with Baclofen and physio is described at length in the original post.]

Shared experience, not medical advice.