Heterotopic Ossification in SPINE!

Hello my name is Rich and I’m new to the group. I got HO in 2014 during a low back surgery which they used 12cc’s of Bone Morphogenetic Protein (BMP). Since then my body has been producing HO in a couple different places throughout my body. My biggest concern is my back. I can feel the pain but nothing appears on imaging so I couldn’t find anyone to help me so fast forward two years after my last back surgery and the HO finally appears on imaging but I can’t find a doctor that is willing to work on me. My HO is from my T3 to my pelvis and out toward the head of both my femurs and upper buttocks.

I have had 22 surgery’s but most of them wasn’t for HO but I’m sure the HO had something to do with the pain. The couple of surgeries that were mainly HO focused only one my front upper thigh/Hip did they use Radiation Therapy in which the HO didn’t grow back in that area which leaves me very confused on why they didn’t use Radiation Therapy on the other HO surgeries even after I requested it???

I am now desperately trying to find a surgeon that would be willing to work on me. I’m aware that it is a long complex procedure and there is no guarantee that the HO won’t grow back even with Radiation Therapy but I’m willing to try because living the way I am now is not an option.

So if anyone knows of any surgeons I would be greatly appreciative.

Thank you

Rich